Help my friend - Puja

Hello Everybody,

I need your help.

My niece, Prachi (11 mths) is suffering from Brain Disease - Leigh's Disease. It’s spread all over in her brain. Leigh's disease usually begins between the age of 3 months to 2 years and progress rapidly. My niece is not able to walk, sit, eat any solid food, she is always on liquid. Her body is very stiff. From the last three months she is undergoing physiotherapy exercises. She is very weak and always needs support. She has the tendency to put on weight very fast.

We have showed her to a Neuro Surgeon in Bangalore. Consulted with so many other doctors and this they have to say "She will not live for more than 6 mths or Max 1 yr”. We are doing everything here, but still there is no progress. Please help me!! There is no cure for this disease. We have showed her to many doctors, but everybody gives the same answer. But we have still not lost hope. Please can you give me the name and contact number of a good Neuro Surgeon, physiotherapist, whom you think can help us. She is in pain; my sis-in-law is heartbroken. My family is suffering and is in lot of pain and I have to be strong and do something.

“Relatives never help”

I have sent across mails to most of the Organization who are looking after such kind of diseases, but no body has answered, accept one who gives me the same answer “There is No cure”. I know I am asking for too much, but if you can take a couple of minutes from your schedule and can find out any info on this (the name and contact number). It will be really grateful.

Request: For all the women’s who are planning to have a baby, or who are already pregnant. Please get your Genetic test done in the 2nd month of the pregnancy. Doctors say that in US and others countries out 77,000 one child gets this disease. But in India out of 100 pregnant women, 10 children are affected. And there is no Cure. I am being a little rude here, but NO body will want there children to be born with a disease which is not curable, which leads to death or abnormal disorders.

Please help me!! If there is any info can you please drop an email at puja.jain12@gmail.com

Thank you so much for all ur help

Puja

Thank you Ishita :)